Today Pearson is 1 week old! It's hard to believe a week has already passed by. Our little P gets more precious by the day! Today was a big day for us. We got the news from Dr. Kays that Pearson's surgery is planned to take place tomorrow around 3:00. He is not satisfied with the progress Pearson has made and thinks that in order for him to get any better, he needs to go ahead and do the repair surgery. This was not the ideal plan as Pearson is currently on ECMO, and when surgery has to take place while on ECMO is poses alot higher risk for complications. Unfortunately, Dr. Kays said Pearson is very sick and while he had hoped he would make some progress once he was put on ECMO, he just hasn't, so it leaves him with no choice but to go ahead and do surgery now. While the surgery is scheduled for tomorrow, Dr. Kays did say that he reserves the right to change this plan at any time. If Pearson starts to make progress over the next 12 hours before doing surgery, then it's possible that he would postpone it. This is a very critical and big surgery and it's very important that he plans it for the perfect time, therefore, he said it could change up until the second before he starts the surgery. It was hard for us to handle this news, but we have put all of our faith in God and we know that he is working his miracle through this doctor, so we just have to trust that Dr. Kays is making the right decision. We need your prayers more than ever, and we look forward to delivering you all good news for a successful surgery tomorrow night.
On a happier note....Pearson has been opening his eyes more and more each day, so we wanted to share a picture with his eyes open. He absolutely melts our heart when he looks at us. It is the sweetest thing in the world!!! Today, he was also sucking on his tube that they have in his mouth, so the nurse let me try giving him a pacifier and he LOVED it. Here is a picture of him going to town on his passy! You will also notice that most of his swelling has gone down.
What a precious little boy! Stay positive Brandi, Pearson has lots of folks pulling for him!
ReplyDeleteLove my picture this morning and Uncle Ted got to see it before he left for work. Praying for a great day today, hopefully surgery will go as planned and you will all be on the next step to recovery. Looks like the BLANTON part of Pearson is showing thru and he needs some FOOD!!!! Don't worry little man Aunt Lunda will cook whatever you want anytime you want in the near future!!!!
ReplyDeleteLove ya bunches
Lunda
I will be thinking of you and praying for Pearson today! Dr. Kays gift, in my opinion, is timing. He seems to sense when the right time to do something is ... when the baby will respond the best so plans can definitely change at a moment's notice. The other CDH parents we were in the hospital with, the mom was all prepared for her c-section, even wheeled into the room I believe (she was having twins, one of which had CDH) and when Dr. Kays got in there he said he just wasn't feeling that it was right and postponed the birth till the next day. I know it's tough though, I remember Dakota's surgery was postponed a half a day and I was freaking out because I had geared myself up for it and it was hard to wait. Keep fighting Pearson! You can do it baby!
ReplyDeleteHugs,
Jennifer
Mom to Dakota RCDH survivor
He's just precious! It sounds like you've got an incredible doctor. We continue to keep your family in our prayers.
ReplyDeleteKatie, Josh, and Charlotte
He is such a cutie! All of you are in our thoughts and prayers! I pray that Pearson's surgery is successful. I know God will be there watching over.
ReplyDeleteLove always,
Kristin and Steven
He is precious!! I can't wait to meet him. I have a real peace about the surgery today and I know that this is the first big step to healing Pearson and bringing him home. I'm praying constantly today. Love ya'll!
ReplyDeleteDebbie
I found the link to your blog through Ashley Lewis on FB. I just wanted y'all to know you're in my prayers.
ReplyDeleteDeanna (Smith) Wiley
Brandi, I'm your mom's cousin (I think the last time I saw you was at Kristen's Christmas reunion). My dad is Gordon. I've been keeping up with you and Matt and Pearson and have been thinking about you all every day. Pearson is positively beautiful. Much love from Memphis. Rebecca
ReplyDeleteHI Brandi and Matt, The Bolton clan and Mount Carmel are praying for all of you. I hope today has been a catch up day and Pearson is growing stronger.
ReplyDeleteGail Bolton