We have created this blog to help keep all of our family and friends updated on Pearson's progress as he begins to take his first baby steps in life. As most of you know, Pearson has a birth defect known as CDH and will have to overcome many challenges over the next several months. We thank you for visiting our blog and encourage you to leave comments as often as you would like. We look forward to hearing from you!
Monday, March 28, 2011
SURGERY UPDATE!!!! Part 2
Pearson is out of surgery! Everything went GOOD as far as getting things moved back where they belong! We are by no means out of the woods, but we are one step closer to bringing our son home. He had 75-80% of his liver in his chest, which was the most Dr. Kays has ever seen, and most of his intestines. He had 10% of his diaphragm. He is one of the worst cases he has dealt with, but we are still keeping the faith that Pearson is coming home! He expects Pearson will be on ECMO for another 10-12 days. This was very surprising news to us as we were hoping it would be sooner. On average babies stay on ECMO for 10-14 days, and Pearson has already been on it for 12 days. The next couple of days are the most critical, and the next 6 days will be pretty rough as well. With this good news comes some bad news. When doing the brain scan today they found a bleed on Pearson's brain. Dr. Kays was shocked to find this and said that Pearson wasn't showing any sign of neurological damage that he could see, but said that usually if they are going to bleed it is usually in the first few days, so having this happen this late in the process really stumped him. They are adjusting some of his medicine, to help control the bleeding and as long as it doesn't progress then Dr. Kays said he isn't terribly concerned. He will have another brain scan in the morning, so we will update you when we know something. Thank you so much for all your thoughts, love, and prayers. We hope you will continue to pray for this long road ahead of us. You all are so special to us. Much Love from Matt and I!!!
Subscribe to:
Post Comments (Atom)
Brandi,
ReplyDeleteWe are so thankful Pearson came through the surgery. Praying that everyday brings you one day closer to having your precious baby boy at home. Praying that God will continue to give you and Matt strength for every moment.
Love,
Donna Harris
Brandi and Matt,
ReplyDeleteThank you for being so brave and sharing Pearson's progress with us! You are all constantly in my thoughts and I know positive things are yet to come! Much love and support to you and your family!
I just came across your blog and wanted to let you know that I will pray for you. My baby girl, Whitney (now 8 months old), is a CDH & ECMO survivor! Hang in there! Try to rest as much as you can, these days are rough!
ReplyDeletewww.thomas-alicia.blogspot.com
Alicia
Brandi, although it is almost 2 A.M., I am still wide awake studying and waiting for this blog update! Thank you so much for keeping us all posted, I know you must be exhausted and it's so sweet of you to update right away. If Pearson's case of CDH is one of the worst Dr. Kays has dealt with, then I continue to pray he will be one of the biggest miracles to eventually leave the hospital and head home! Continuously praying and believing....
ReplyDeleteLove and hugs to you all!
Drew, Lindsey, and Connor
Matt and Brandy,
ReplyDeleteGlad to hear the surgery is over.Hope you guys are doing well.As Ella Kate said"God must have big hands because he hold us all in them" and he is holding Pearson really tight.We are praying for him, he is a tough little guy, let the healing begin.Take Care.
Love Toby and Elaine
Matt and Brandi,
ReplyDeleteSo glad to hear that the surgery was successful, and looking forward to hearing Pearson's progress. Hope you guys are doing well, and know that you guys are two of the bravest people that we know! Love you guys so much!
Love,
Jud, Courtney, Callie and Jack
Brandi and Matt...
ReplyDeleteI checked the blog last thing before I went to bed, and 1st thing this morning, from my phone... my eyes were barely open, but enough to read that the surgery was successful.... Praise the Lord.... these other issues are just stepping stones to get Pearson where he needs to be, and to get the rest of us were we should be... Closer to God... Thank you for your candor, and willingness to share the good and the bad... we love you and will continue to pray for Pearson, You and Matt...
Many, many prayers for good, stabile, boring days and lots of rest and recovery for Pearson!!! HUGS!!!!!
ReplyDeleteJennifer
Mom to Dakota
RCDH Survivor
Matt and Brandi,
ReplyDeleteI have been praying so hard for baby Pearson and your family. God is still a miracle working God and I believe that he is working one on little Pearson right now! I will continue to pray for his situation. Much love.
-Heather Smith
Your father and I want you to know we just simply love you....I hope that says it all..I have lots of people praying not only for Pearson but you and Matt as well...
ReplyDeleteMindy
I'm so glad Pearson's surgery is over even though he has a long way to go. Uncle Dave and I will continue praying!
ReplyDeleteAunt Judy
Prayers for Pearson from another CDH "family member"!
ReplyDeleteLisa Razza
Mom to Ramsey, born 1-12-11
rootingforramsey.blogspot.com