Unfortunately I am unable to use my computer here at the hospital, but I wanted to briefly inform everyone as to what is going on. I'm having to type this on my phone so I apologize for the shortness.
First, let me start off by telling you all that Matt and I have been blessed with a gorgeous baby boy, whom I must say looks just like his daddy! He was born March 15 @ 9:50 weighing 6.14lbs and 20.5". As we all knew, Pearson is a more critical case of CDH so we were prepared that this would be a battle from the beginning. The first 24 hours did not go well so Dr. Kays made the decision yesterday afternoon to put Pearson on ECMO, which is a lung-heart bypass machine that will do the job of his heart and lungs since his lungs are so underdeveloped. He has remained stable throughout the night, so we are pleased with that. Pearson still remains in critical condition and we are taking one hour at a time. We are so excited to now have a 2 day old baby and just thank God for the time he's already given us with our son. We are staying strong and staying positive and the faith we have in God is like no other, and we truly believe Pearson is going to fight his way through this as he already has started doing. God is hearing all of our prayers so please continue to pray. We love you all!
Good Morning
ReplyDeleteHope you and Matt got some rest last night. So happy that Pearson had a stable night. We are getting ready to leave and I am so excited to get to take a peek at my "GREAT NEPHEW" I am excited to see you and Matt TOO!!! I need hugs. Tell Matt that I am bring him a Key Lime Cake. I love you three and am so proud of the strength and faith that you both are having in God right now. See you this evening
Lunda
As the mom of a right-sided CDHer who also went on ECMO, I want to continue to give you hope from the other side! It is a big, scary machine, but it is also a miracle and it will help Pearson get over "the hump" just like it did my Dakota! It gives their little bodies a chance to rest and gear up for their fight! I remember asking Dr. Kays once what he thought was worse, right side or left side CDH, and he responded that neither was worse, they were just different and that in his experience right siders often start out sicker, but they steadily improve, while left siders have a little bit more ups and downs sometimes. Pearson will get there, day by day, step by step! Many, many prayers for stabile days and continued progress!
ReplyDeleteHugs,
Jennifer
Mom to Dakota 12-25-2008
RCDH/ECMO survivor
Congratulations! So glad to hear Pearson had a stable night. I hope you are recovering nicely from your surgery and gaining your strength back. I know the days ahead will be tough but God will see you through them. Uncle Dave and I are praying for all of you!
ReplyDeleteAunt Judy
Congratulations Brandi and Matt! I'm sending positive thoughts your way!
ReplyDeleteBrandi, we are all still praying diligently and begging God to heal Pearson and provide him with every single thing he needs to make it from one day to the next. We love you all!!! You all weigh on my heart and mind every hour of the day, and I hope you feel all of the love and support from home!!!
ReplyDeleteBig hugs!!!
Lindsey
Brandi...I'm SO glad I found your blog as we've been "out of touch" for much too long. I will be keeping up regularly and add us to the list of families praying hard for you and yours.
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