What A Night!!!

As you know, Pearson started making progress on Wednesday so they didn't do the surgery.  Since then he has continued to make progress and has had some of his best days yet.  His oxygen has continued to get better, which means his lungs are starting to mature a little, and they have been able to slowly wean him off the ECMO machine.  There goal is to get him off of it before doing the surgery. It will pose alot less risk if they can wait on surgery.  It is possible that he could be off of ECMO in the next week.  Let's keep praying and I know God will answer our prayers!
I wanted to share all the positive news first, because things went a little differently last night. With the ECMO machine the circuits sometimes go bad after running them for a long period of time, and unfortunately this happened with Pearson's machine.  They had to change his machine out, which meant that they would have to take him off of the ECMO for about a minute while they switched him over.  Dr. Kays came in around 9 last night to make the switch and everything went good. Pearson responded really well during the change, which told Dr. Kays that his lungs are doing some work.  About an hour after the change of machines Pearson started taking a turn for the worse.  His numbers were down and he came out of being sedated.  When they switch machines they have to start all of his sedation medicine over so he woke up quite a bit when the medicine got out of his system and he became very aware of all the tubes in him.  HE WAS NOT HAPPY!!!! We dealt with a fussy baby for about 4 hours, which meant having to sit there and watch this sweet helpless little boy kick, throw arms, and cry for hours.  For those of you who don't know, these babies can cry, but can't make any noise so it absolutely breaks your heart when they are silently crying and there's not much you can do for them.  Finally, the sedation medicine kicked back in and he calmed back down around 2:00 this morning.  Matt and I certainly got a dose of parenthood and staying up late with an unhappy baby, except it's alot harder when you can't hold them or comfort them.  His oxygen levels haven't gotten back up to where they were prior to the machine change, but Dr. Kays seems to be ok with them at this point.  Hopefully after some rest today his numbers will go back up, but Dr. Kays did warn us that sometimes whent they have to switch our the machines it can set the baby back 12-24 hours. 

Everytime I get on the blog I see new followers and I'm so happy to see that so many people have found us!  It's a tough road we are on, but you all make it better! Thank you!