We have created this blog to help keep all of our family and friends updated on Pearson's progress as he begins to take his first baby steps in life. As most of you know, Pearson has a birth defect known as CDH and will have to overcome many challenges over the next several months. We thank you for visiting our blog and encourage you to leave comments as often as you would like. We look forward to hearing from you!
Thursday, May 26, 2011
Another bump in the road...and it's not on interstate 75!
Well, unfortunately I'm not posting this from home. Yesterday Pearson had several test done to get ready for discharge and when they did the echocardiogram they found a clot in one of his arteries...most likely from being on ecmo. They are going to treat it with heparin therapy, which is where they insert an IV looking thing in his leg, and that is where they will put the heparin through with a shot. He will have to also come home with this and Matt and I will continue the heparin at home as well as follow up with a cardiologist. We are hoping to leave sometime next week, but it's too early to tell. Although this has been a set back and we hate that Pearson has to go through this, we also feel so blessed that they found it before something worse could have happened. We want to take Pearson home so badly, but not until he's healthy and ready. We love you all and appreciate all of your continued thoughts and prayers.
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bumps are okay!!!! he has come sooo far, quicker than we had first thought... keep the faith, and we will continue to ask Gods blessings on you and this sweet miracle he has given...
ReplyDeletelove, hugs and kisses
Connie K
sorry to hear that but definitely glad they found it before you go home. we're coming back on tuesday for drew's follow up with the cardialogist and dr. kays. drew also has a hernia that dr. kays has to fix. it's suppose to be an outpatient procedure. will keep praying for you guys...
ReplyDeletelove,
lee ann (drew and cooper's mom)
Hang in there! precious pearson will be home soon and in several months you'll hardly think that this was all real! He'll so strong and healthy and active and perfect you'll hardly think about all the bad that went on! At least, I'm trying to get there with my daughter! :) They are miracle babies!
ReplyDeletealicia, mommy to Whitney RCDH & ECMO survivior