I'm almost 5 months old....Can you believe it!!!!

Hi Everyone! I want to start off by apologizing for not updating you all as often as I should.  It's so hard to make myself get on the computer after a long day with Pearson, and now my 2 year old nephew, Stephen, whom I am keeping. I am obviously unable to work with all of Pearson's special needs at this point, so keeping Stephen allows us to have some sort of extra money to make up for me not working. I feel incredibly blessed to be able to stay home with Pearson, but I'm willing to make whatever sacrifices it takes to be able to be home and kiss and squeeze and love on my precious angel ALL day long! I tell Matt all the time...." I really think I could just sit around and stare at him all day!" Pearson that is! Lol! We have been having the best time watching him grow and change.  He is doing so good holding his head up and building his strength.  He is trying really hard to roll over and squirms around all the time.

As you may remember, we made our way back to Florida to see Dr. Kays and the cardiologist a few weeks ago.  The cardiologist checked to see if the blood clot in Pearson's heart was gone and it WAS!!! This means NO MORE SHOTS!!!!! Dr. Kays was also so excited to see him and was very pleased with Pearson's progress. We love our Dr. Kays and as always, it was so great to see him. We were really looking forward to this trip because even though Pearson sees his pediatrician at home all the time, it's almost a sense of security once Dr. Kays gets to see him and says everything is okay.  We know that when he says that, then everything really is okay.  He's the only one that knows everything that Pearson has been through, so getting a report from him is always great and reassuring. He said Pearson will probably be on oxygen until atleast September, which we were happy to hear. Pearson gets more and more aggravated with those tubes and cannula's on his face everyday.  Not to mention he's getting stronger and more aware of his hands so he pulls at them all the time.  It's so hard to keep them taped on his face at times.  And the million dollar question....Is he still feeding through the g-tube??? YES he is! Alot of people ask if/when he will be off the g-tube, and to answer everyone question, we really have no idea unfortunately.  Only God and Pearson know the answer to that.  It all depends on Pearson and when he decides that he is ready to take a bottle by mouth.  I am still pumping my breast milk so I try to nurse him as well as give him a bottle daily, but we still haven't had any luck.  I don't think he has really made any improvement at all.  He still gags really bad as soon as you put something in his mouth and completely refuses to suck on anything but his fingers.  We are still so ecstatic that we are even at home with our precious baby boy that we are perfectly fine with Pearson learning and doing at his own sweet little pace.  He has come so far even just since we got him home and we couldn't ask for anything more. Can you believe he is almost 5 months old!!!! I certainly can't!!!

One of the other big things that Dr. Kays told us was that Pearson can now venture out of the house and into the real world! We were super excited to hear this, because there are so many places that we can't wait to take him.  One of those places being church.  Matt and I have dreamed about the day that we would get to go to church as a family. The last time I went to church was the week before I got put on bed rest in January and it was a Sunday I'll never forget.  Everyone in the church met at the alter to pray for Pearson and it was so ironic that this would be the last time I would be able to go to church before he was born.  What can I say...GOD answers prayers! Last week I was able to walk into that church holding my healthy, beautiful baby instead of carrying a very sick baby in my belly.  It was so great to share Pearson with all of our wonderful and loving church family who have been there for us and prayed so diligently for our family.  We look forward to many, many more great Sundays!!!

First Day at Church



My new favorite thing....blowing bubbles!



I've found my hands

Heading home from Florida....I was such a trooper!

Look how strong I am...I can lift up my legs now!

Hanging out in my stroller at Dr. Kays office

Hanging out on the counter while mom cooks dinner!

These are all pictures that my aunt, who is an amazing photographer, took of Pearson.