Monday, April 11, 2011

Today was another good day as far as Pearson making progress.  They are continuing to wean him off of his meds as well as his conventional ventilator.  One of the medicines they are slowly taking him off of is his sedation medicine, which means he is becoming more aware of all the tubes, especially the one in his mouth.  This has made him alot more restless and fussy and causes him to gag more as well.  He is also moving around alot more, which causes the mucous in his chest to loosen up, and when it builds up it causes him to feel like he is drowning.  The nurse then has to suction him, which is where they put a tool into the tubes down in his throat and suction out the mucous.  He feels much better once they do this, but it is so pitiful and hard to watch him cry, gag, and squirm when he starts having that drowning feeling.  He had a rough day with this a couple days ago, and then yesterday was better, but today was a little worse again, so he didn't rest a whole lot.  He was pretty unhappy, but luckily his stats stayed good, so they were able to continue with lowering the oxygen level he was receiving from the ventilator.  Eventually, when he is able to come off of the ventilator, he will then be on a c-pap, and then the oxygen tubes that just go in your nose like you see some people have.  Once he gets to the oxygen tubes in his nose and remains stable we will get to finally hold him.  Unfortunately, we aren't sure when that will be still, because it just all depends on how well Pearson does and how fast his lungs develop. Let's continue to pray for those little lungs of his! I know we aren't the only ones who are ready to hold this precious angel! We love you all and thank you for the wonderful and encouraging comments! We look forward to reading them everyday!

3 comments:

  1. I don't know you, but I will pray for your little boy Pearson. My daughter is turning one this month, and she is a RCDH and ECMO survivor. Miracles happen every day. Take care of each other and of yourselves.

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  2. Sounds like excellent progress! Pearson showing that even when he is upset, he can maintain his sats, is wonderful! I got to hold Dakota when she was on CPAP, but it's more difficult and you have to wait until he's used to it and also wait for the right nurse who is willing to help you move all the tubes. My husband waited until she was on the nasal cannula, so it just depends. Have you had Melissa as a nurse? She is the one who first helped me hold Dakota. Dakota HATED C-PAP! She threw such fits on it! She would push up on her arms and throw her head from side to side (I am convinced it helped with her neck strength and control) and she would manuever until she got it out of her nose, then she would sit there very quietly until someone noticed, the little monkey! One morning when she had been on CPAP for a week she was throwing an absolute fit, and Melissa asked if I wanted to hold her to try to calm her down. Worked like a charm and I will never, never forget that day. You will get there soon and it will just be all the sweeter for the wait!
    Many prayers for continued progress.
    Hugs,
    Jennifer

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  3. We are grateful for these little baby steps in forward progress. We will continue to pray for his body to strengthen every day, and for you and Matt to be patient as God and the doctors work their miracles with this precious little gift. He is four weeks old today, and I cant wait for you to get to hold and cuddle him. I know how special that time will be. Give us an update on Length and Weight when you get a chance.
    Love, Hugs and Kisses to you...
    Connie K

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